So tonight I am taking a shift for a couple of hours by myself and Steven is sleeping, which leaves me with the computer and a venti pumpkin spice. This is what you might call armed and dangerous for me. We have had a wonderful day full of progress, it is so difficult to have him look at us with such a sad look but most of his discomfort and frustration came from having things removed. The only thing left of real significance is the central line and that should be removed before we get moved to a room, which will be tomorrow if all continues to go well. The doctor's have been playing a balancing act when it comes to his blood pressure as it has been high for most of the day. It is currently under control but this is just the second time today that it is where it should be. This is the only thing that might hold us back from getting moved to a room tomorrow. He was on blood pressure medicine before surgery so it is no surprise that it is difficult to have it stay normal so soon after surgery. We were warned in advance that he might still go home on one if not both of his medications and it looks like it will be both. It will not be long term, just until his heart gets acclimated to the closure and realizes that it can relax some. Hopefully no longer than a month. But a little medicine for a month or even two cannot take away of all the improvements and progress that he has made today. We are a very happy family. Tomorrow only looks to be better, with the possibility of a room and a visit from Miller...I am so excited. This has been a long week away from Miller and our stay in CVICU has just been tiring. There are wonderful nurses here but it is exhausting. Can I have a bed please??? This is not a place for comfort. Two "office" chairs does not create a relaxing setting for a night full of sitting. I am not asking for Lazy Boys but I think the floor might be more comfortable, just don't care to sit on the floor in a hospital. :-) And here are a few things that I have figured out / learned from our stay here so far.
1. If you plan on parking your car in the garage for the day, you might as well valet.
2. Flip flops are not an ideal shoe to wear in a hospital. If you cannot stand to have cold feet and plan on wearing flip flops, bring a pair of socks.
3. Taking turns having someone else sit with your child is wonderful, utilize your resources...aka grandparents!
4. Food court closes at 6, McDonalds is open until 3 am and reopens at 5, I did lose a bet on this, and the most important Starbucks closes at 10:30 M-F and at 9 on Sat and Sun.
5. I will forever drop some change in the coin donation slot at any and every McDonald's I visit to support the Ronald McDonald House, what an incredible organization that offers help and comfort to so many.
Well I think this is a long enough post for the evening. I want to end this by saying that today is Steven's birthday, not our Steven but David's brother Steven. Happy Birthday to you and thank you for looking out for our sweet mess from your home in heaven!!!! I can't wait to meet you!!!
No comments:
Post a Comment