Home Sweet Home???

So we have been sent home.  Not what we had in mind!  Steven had the echo, ekg, and x-rays done today however there is concern that he might have a double aorta.  Yep, maybe something else in addition to the VSD.  Because none of the images were clear enough to determine if he does or doesn't, they had to schedule an appointment with radiology for a scan.  We will be going back next Tuesday to have the CT scan and then consult with surgeon.  What can I say, our sweet little mess might be a little messier than we thought! ha!  Although we are disappointed that we have been delayed we totally agree with the reason behind it.  We were able to meet with both the cardiologists and the surgeon today.  There is no doubt he will have surgery for the VSD but the idea of going in and not being a 100% clear of his heart and all it's differences would just be a gamble.  As a mom, I am worried about the lack of weight gain because he still isn't gaining.  However the doctor's were not that alarmed that he isn't gaining, they are more curious as to why.  Our cardiologist in LC, had discovered that Steven's heart was not the same "design" as most and we were told that it was not a concern just that it would be important for the surgeon to know.  Today they spent an hour doing an echo to try and get a good view of the aorta but it never happened.  Steven was extremely patient with them (he must get his patience from his daddy) as he slept for most of that hour.  From what I understand a symptom of having a double aorta is not feeding well, which is what they think might be behind his lack of weight gain.  However most of the symptoms and Steven do not match so I am not going to fret over it.  When we asked what it would mean, it was just that it would be something else that needs to be fixed.  We also found out that where he has another opening in his heart the flap that isn't closed also has openings in it.  The doctor described it as swiss cheese.  The list of repairs just keeps getting longer, huh?  I feel so bad for Steven but I have never seen such a good baby.  The only time he fussed, well the only time he showed them his lungs was during the x-ray...he was not a happy camper!  It was very tough for me to have to hold him down for it, how in the world will I survive this surgery????  Well it has been a very long day so I am going to wrap this up.  It is going to be another long week and then we get to try it again.  Hopefully it will be conclusive and we will be able to proceed with the surgery.  The only good thing about it being delayed, we will be able to watch the LSU vs Oregon game at home instead of a hospital room!  Go Tigers!!!  Thank you again for all of your messages, texts and prayers, please keep them coming...I hope we didn't lose any prayers because we are Tiger fans!  :-)