EKG, Ultrasound, X-ray, Blood Work All Before Noon

Today was a busy day for Steven.  I took him to his weekly cardiologist appointment and it turned out to be a hectic morning.  As if trying to get Miller to school by 7:40 wasn't stressful enough for me, ha!  It was a good appointment even though he had to endure a lot.  Every week the EKG and ultrasound are done on him.  He doesn't even cry anymore.  This is the second time for the x-ray and he handled that pretty well.  But when it comes to the blood work he could have that every day and not get used to it.  I think he screamed so loud he might have made sedated patients in the hospital wake up!  The blood work was crucial today because the dr needed to see how his little body is handling his medication.  He has two different kinds that he takes several times a day and the dr needed to make sure his body was handling it well before increasing it.  The results were good so now he takes more per dose and 1 more dose a day of another one.  The reason for the medication is to hopefully slow down his breathing some and the other is to flush his lungs of the blood that is being pumped in.  The last couple of weeks I have been worried that Steven was going to become a case study because his symptoms did not match the natural stages of VSD.  Today's visit showed that he is starting to show the progression.  This is good because his body can handle the surgery now.  Another good thing about the visit, a referral to Texas Children's.  We really want to go there for surgery for one reason, the support we will have around us between family and friends.  Steven's cardiologist is fine with us going there as long as one particular surgeon will perform the operation, if he doesn't we will probably end up in New Orleans.  Prayer request of the week, Dr. Frasier (sp?) will perform the surgery!!!!  We hope to have an appointment for a consultation in two weeks.  We do not know what timeline is ahead for Steven with the surgery.  I do know that we are at the max when it comes to us giving him the medication without having to be admitted to the hospital.  I hate the idea of this sweet little boy having open heart surgery at such a young age but if his body can handle it, then let's get it done!  Thanks for reading and thanks for the prayers!