I want a do over for the entire day! Today did not go as I had planned. Sweet Mess had his appointment with Dr. K, our cardiologist here and his blood pressure is still too high. Today it was 135! Remember upper 80's to low 90's is where it should be. Dr. K sent us to have lab work done and has called out another medication to help control it. Steven was not really crying or anything when the bp was checked so it is a huge concern. The only "comforting" thought is that the time of day that it was checked was just before his dose of bp med so that means that it was basically out of his system and so I hope that it isn't always THAT high. He also wants him to see a nephrologist, kidney specialist, to make sure there is not anything wrong with the kidneys. We have had a VCUG (an xray to check the flow in the kidneys) and we have seen a urologist and everything looked good. But Dr. K pointed out that prior to surgery Steven's bp was never this high and maybe the kidneys suffered some during the bypass from surgery. Needless to say, he was making phone calls to see if on Monday when we go to TCH if we can also get in with a nephrologist. High bp can cause kidney disease as well so we need to get in as soon as possible. I am not sure if this is making sense because as usual I was by myself and I really can't remember everything. It all gets a little fuzzy after 135! I can always have someone come with me and David normally does if it is a new doctor or major appointment but I thought today was going to be a little social visit and check up! I do know that one really positive shocking thing was that someone weighs 14 pounds...look out you heavy weights, someone is moving on up! But his weight cannot take away my worry and concern about his bp and now his kidneys. I am emotional and just tired! I want our sweet mess to be well, I want to leave an appointment feeling positive and not worried, overwhelmed and scared! I remember the first appt with the pediatrician when she mentioned a big or bad murmur and I could sense the urgency in getting him to the cardiologist. Well today I had the same feeling but instead it is for a nephrologist. I am so thankful for Dr. K and his staff for their approach of addressing a concern. I understand the wait and see but I prefer the proactive!
In addition to all that, Miller has strep throat. At the end of the day yesterday school called and so his dad picked him and got him into the doctor. Miller even took the shot over the medicine because he wanted to go to school today. He also stayed with his dad and Lara an extra day because he didn't want to get Steven sick. He is such a sweet boy...when did he get so big? I feel like I have only seen him for just a few days in several months and I feel so bad for that. We are very thankful for all the help from his dad and Lara. It is good that when he cannot be home, he is still at one of his homes! :-)
Although today really was a discouraging one, I was very happy to have my mom come over for the evening. It was just a nice night with mimi! She helped Miller with his homework, she and I got to visit and she brought prizes for us all. Nick's boudin/boudain for us and light up cars and books for Miller. With or without Nick's, I am just glad that she was here, especially today!!! Thanks Mom!
Well it is almost medicine time and I am ready to try and get some sleep! But please continue to pray for Steven and his health! Also, I mentioned earlier this week my boss and her father, well he passed away yesterday morning, so please keep Roxanne and her family in your prayers as well. Lastly for Miller to get well and hopefully stay well. He seems to be very prone to strep this time of the year every year! THANK YOU!!!!!
I hope you all have a great Friday!
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